Wednesday, July 30, 2014

Autism Awareness: What is Autism?

Autism Awareness: What is Autism?

Autism spectrum disorder (ASD) is a range of complex neurodevelopment disorders, characterized by social impairments, communication difficulties, and restricted, repetitive, and stereotyped patterns of behavior. Autistic disorder, sometimes called autism or classical ASD, is the most severe form of ASD, while other conditions along the spectrum include a milder form known as Asperger syndrome, the rare condition called Rett syndrome, and childhood disintegrative disorder and pervasive developmental disorder not otherwise specified (usually referred to as PDD-NOS. Although ASD varies significantly in character and severity, it occurs in all ethnic and socioeconomic groups and affects every age group. Experts estimate that three to six children out of every 1,000 will have ASD. Males are four times more likely to have ASD than females.

What are some common sign of Autism? The hallmark feature of ASD is impaired social interaction. A child’s primary caregivers are usually the first to notice signs of ASD. As early as infancy, a baby with ASD may be unresponsive to people or focus intently on one item to the exclusion of others for long periods of time. A child with ASD may appear to develop normally and then withdraw and become indifferent to social engagement. Children with ASD may fail to respond to their names and often avoid eye contact with other people. They have difficulty interpreting what others are thinking or feeling because they can’t understand social cues, such as tone of voice or facial expressions, and don’t watch other people’s faces for clues about appropriate behavior. They lack empathy. Many children with ASD engage in repetitive movements such as rocking and twirling, or in self-abusive behavior such as biting or head-banging. They also tend to start speaking later than other children and may refer to themselves by name instead of “I” or “me.” Children with ASD don’t know how to play interactively with other children. Some speak in a sing-song voice about a narrow range of favorite topics, with little regard for the interests of the person to whom they are speaking. Children with ASD appear to have a higher than normal risk for certain co-occurring conditions, including Fragile X syndrome (which causes mental retardation), tuberous sclerosis (in which tumors grow on the brain), epileptic seizures, Tourette syndrome, learning disabilities, and attention deficit disorder. About 20 to 30 percent of children with ASD develop epilepsy by the time they reach adulthood. While people with schizophrenia may show some autistic-like behavior, their symptoms usually do not appear until the late teens or early adulthood. Most people with schizophrenia also have hallucinations and delusions, which are not found in autism.

How is autism diagnosed?ASD varies widely in severity and symptoms and may go unrecognized, especially in mildly affected children or when it is masked by more debilitating handicaps. Very early indicators that require evaluation by an expert include:
 • no babbling or pointing by age 1
• no single words by 16 months or two-word phrases by age 2
• no response to name
• loss of language or social skills
• poor eye contact
• excessive lining up of toys or objects
 • no smiling or social responsiveness.
 Later indicators include:
• impaired ability to make friends with peers
• impaired ability to initiate or sustain a conversation with others
• absence or impairment of imaginative and social play
 • stereotyped, repetitive, or unusual use of language
 • restricted patterns of interest that are abnormal in intensity or focus
 • preoccupation with certain objects or subjects
 • inflexible adherence to specific routines or rituals.
 Health care providers will often use a questionnaire or other screening instrument to gather information about a child’s development and behavior. Some screening instruments rely solely on parent observations, while others rely on a combination of parent and doctor observations. If screening instruments indicate the possibility of ASD, a more comprehensive evaluation is usually indicated. A comprehensive evaluation requires a multidisciplinary team, including a psychologist, neurologist, psychiatrist, speech therapist, and other professionals who diagnose children with ASD. The team members will conduct a thorough neurological assessment and in-depth cognitive and language testing. Because hearing problems can cause behaviors that could be mistaken for ASD, children with delayed speech development should also have their hearing tested. Children with some symptoms of ASD but not enough to be diagnosed with classical autism are often diagnosed with PDD-NOS. Children with autistic behaviors but well-developed language skills are often diagnosed with Asperger syndrome. Much rarer are children who may be diagnosed with childhood disintegrative disorder, in which they develop normally and then suddenly deteriorate between the ages of 3 to 10 years and show marked autistic behaviors. Girls with autistic symptoms may have Rett syndrome, a sex-linked genetic disorder characterized by social withdrawal, regressed language skills, and hand wringing.

Most importantly these people/children can love and be loved just as much as anybody else. They deserve it.

Sunday, July 20, 2014

Chewy Tube aka Ark Grabber XT

 Number 1 from the first blog posting: The chewy tube(ARK Grabber) has helped our son to cope with the big world in so many ways. This device is typically bought for special needs children with bad chewing habits or children with speech impairments. This chewy tube comes in multiple colors, sizes, shapes, textures and smells to fit the needs of your little one. I typically buy
from http://www.arktherapeutic.com/ . One will run around $6.99 or 3 for $18.99. The more you buy the cheaper the individual tubes end up costing.

My son has a bad habit of chewing furniture and his shirt at times. His occupational therapist suggested the chewy tube. We give this to him in order to replace those things that he shouldn't be chewing on. I would say children 3 and older should definitely get a TEXTURED chewy tube. My son is an extreme chewer so we have to order him the textured ARK Grabber XT which is more durable.

This tube helps with my son's nervousness in open spaces or when he is over excited, either way he HAS to chew on something. I remember when we first moved into our house and we mysteriously found ALL of our flip flops chewed to the sole! You would have thought we owned a puppy. We failed to realize that the new move would make him so anxious! Once we realized what was going on we quickly found his chewy tube and gave it to him.

This tube also helps when my five year old has random moments of putting inappropriate objects in his mouth. It is really good to use when redirecting him. I usually buy the 3 pack of chewy tubes. I send one to keep at school and I use the other at home, the third is used just in case one of the other two gets missed place.

Another good use for the chewy tube is that it is also used to improve the speech. It helps to exercise the jaw and aids in building oral strength and control.

Below is a list of other uses with the chewy tube. I copied and pasted this directly from the previously given site.



  • As an oral fidget for sensory seekers craving stimulation and proprioceptive input
  • As a safe alternative to chewing on hands, knuckles, shirts, pencils, etc.
  • As an alternative to tooth-grinding and/or thumb-sucking
  • To exercise the lips, tongue, cheeks, and especially the jaw
  • To allow the mouth to learn and grow strong through oral exploration
  • To practice biting/chewing without the risk of choking
  • To build oral strength, mobility, and control
  • To satisfy the urge to chew for individuals who are fed through a g-tube
  • Friday, July 18, 2014

    My Son

    It's one thing to have a kid and then to have three and then to have one with Autism. Those are my two beautiful daughters Sarah and Samiya.(Left to Right)

    You see that handsome guy right up there? We call him Stevie J he was diagnosed with Autism when he was 18 months old and I was 7 months pregnant with his younger sister Sarah. He was able to be diagnosed so early because his daycare informed us that he wasn't speaking, smiling or making eye contact. Also he was mouthing EVERYTHING like a 5 month old. Needless to say we went through a very rough time dealing with his initial condition. We had him referred by his pediatrician to a neurologist and also had some wonderful people from the Florida Easter Seals to lend us a helping hand. While he was still in daycare professional therapists were sent directly to him to help with behavioral and speech problems. He then was transferred into the hands of the School District of Indian River County once he turned 3. While he still remains in the school system he has made leaps and bounds with help from an AMAZING pre-k teacher. When he initially entered the public pre-k ASD school system program at 3 he was doing 24 piece puzzles and starting to become obsessed with technology. He still wasn't verbally speaking yet but staff members soon learned he was very intelligent. He is now five and getting ready for his first year of Kindergarten and boy are we EXCITED!

    We found some resources/materials to be crucial to his way of dealing with the big world.
    1) His beloved chewy tube
    2) His PECS Book & System
    3) His AT Device (He is the youngest known in the county to be able to use such a device)
    *I will hit on these these things in more detail with later blogs.

    Whatever your case is..educate yourself about Autism and learn to look for signs of vital development in children. Prayer works...Stevie J says "Hi" and "Bye" now.